Tuesday, March 6, 2007

'Personal' health websites sought

Wednesday, 7 March 2007, 00:13 GMT

Internet user
People like to read personal testimonies, the study says
People searching online for health advice often reject sites giving high quality information in favour of those with a human touch, a study suggests.

Researchers found people use an initial weeding out process to deal with the minefield of health information of variable quality available.

However, this tends to mean they quickly eliminate most NHS and drug company websites, they said.

The study was funded by the UK's Economic and Social Research Council.

People don't have the patience to scroll through pages in order to find something useful
Professor Pamela Briggs
Northumbria University

The researchers examined the internet search strategies of people who wanted to find specific health information on topics such as high blood pressure, the menopause and hormone replacement therapy (HRT).

They found that many websites were dismissed at quite amazing speeds.

Lead researcher Professor Pamela Briggs, from Northumbria University, said: "One thing that really put people off was advertising, so people clicked off drug company websites straight away.

"Generally, the medical information on drug company sites is very accurate but people question the authors' motivation and agenda.

"The issue of impartiality is quite crucial in building trust."

Personal stories

NHS websites fared little better. Often these were rejected because the first page participants were directed to was a portal or they had too much background or generic content.

Professor Briggs said: "People don't have the patience to scroll through pages in order to find something useful.

"Ease of access is so important."

The research also found that even if a site made a favourable first impression, it was unlikely to keep the attention if it did not include personal stories to which the reader could relate.

Many were specifically drawn to sites where they could read about the experiences of other people who have the same problems and concerns.

But Professor Briggs warned that the tendency to trust sites with personal testimonies from like-minded peers was potentially flawed, as it could reinforce unhealthy behaviour patterns.

Dr Paul Cundy, a GP and member of the British Medical Association's IT committee, said there was also a danger that personal testimonies were planted by drugs companies.

He said drugs companies had been known to sponsor self-help sites which appeared at first glance to be independent.

"People should be encouraged to gather information from the web, but they should then take it to a doctor to discuss face-to-face rather than immediately taking action based on what they have found," he said.

Source: BBC
http://news.bbc.co.uk/1/hi/health/6422157.stm

RELATED INTERNET LINKS

Tuesday, February 27, 2007

DailyStrength — the health support social network

Posted By Matt Marshall On 26th November 2006 @ 22:59 In Business and Technology |

dailystrengthlogo.bmp[1] DailyStrength is another one of those Internet sites you swear you’ve heard of before, because the idea sounds so obvious and the need so great.

It is a health support social network, and it has just raised a first round of funding from Redpoint Ventures.

Health care has been a popular theme in recent years. You’ve got search engines like [2] Kosmix and [3] Healthline, advice sites for doctors, and large informational sites like [4] WebMD. But none have developed vibrant social networks. WebMD has [5] messsage boards, but that’s it.

If you’ve got second-stage breast cancer, and you’re about to take a drug called Tamoxifen, what happens when you do that? Where do women go to find people who are also taking the drug, correspond with each other, and give each other virtual “hugs” at 3am? That’s the place DailyStrength aims to be, says co-founder Doug Hirsch.

It is early days for the site. It takes a second to see all that is there; its front-page is a bit busy. But once you dig deeper and play around with it, it is quite logical. Each member of the network belongs to a community centered around a health problem, say breast cancer — and they each can create a personal profile. Finally, there’s a listing of treatments, which is also cross referenced with communities and the profiles.

Hirsch likes to point, for example, to the second most popular treatment, [6] Lexapro. The Lexapro treatment page shows that more than 100 people have used it, but that only half of them find it works. But it shows ten people used it for bipolar disorder, and 80 percent of them report it successful. While not scientific, it provides a good guide nonetheless.

dailystrength.bmp

The site then lets you drill down, by selecting the “bipolar disorder” link, which takes you to a page with more information about that health problem, and a listing of members suffering from it, and the discussions they are having about it. See screenshot here:

dailystrengthbipolar.bmp

DailyStrength has four employees, and six contractors. It is based in Los Angeles, but is still semi-virtual, with Hirsch’s other co-founders Lars Nilsen and Josh Deford in Santa Cruz and Portland. DailyStrength launched quietly in September, and had 50,000 unique visitors in November, Hirsch says.

Inspiration for the site, Hirsch says, came during college when Hirsch watched a cousin get liver cancer and die within a few months. Hirsch “ran away” from it at the time, but the experience stuck with him, he says.

Coincidentally, Hirsch developed an interest in the social aspects of the Web. Hirsch joined Yahoo in 1996 as employee #20 and ran product management at Yahoo for chat, personals, message boards, groups and mail. He left in 2001, and ran Yahoo’s entertainment division for four years. Hirsch was also a vice president at Facebook for a few months, until he left earlier this year. His two co-founders are also ex-Yahoos.

The Web’s social networking sites are only popular among the 15 to 25 age-group, Hirsch says, with the exception of [7] LinkedIn. To be popular among a wider age group, a site has to deal with a subject people are passionate about — for example, sex, money or survival. That explains LinkedIn, Hirsch says — it serves peoples’ perceived need to network in order to make money. Health and survival, however, are passions that don’t have social networking outlet to date, he said. Thus DailyStrength.

There are a slew of other sites that come close to what DailyStrength does, such as [8] CarePages, and [9] CaringBridge and [10] OrganizedWisdom, but none of them have focused as much on networking or offer the latest Web 2.0 tools and look we’ve become familiar with. One more recent Silicon Valley competitor, [11] MDJunction, comes close; it is still focused on breast cancer, but is building out. There is also niche site [12] Breatcancer.org, which has a vibrant community, but it is non-profit. Steve Case launched [13] Revolution Health in April last year, but it’s not clear where it is headed.

(Hat-tip to [14] Noah)


Article printed from VentureBeat: http://venturebeat.com

URL to article: http://venturebeat.com/2006/11/26/dailystrength-the-health-support-social-networking-site/

URLs in this post:
[1] DailyStrength: http://www.dailystrength.org
[2] Kosmix: http://www.kosmix.com
[3] Healthline: http://www.healthline.com
[4] WebMD: http://www.WebMD.com
[5] messsage boards: http://boards.webmd.com/topic.asp?topic_id=138
[6] Lexapro: http://www.dailystrength.org/treatments/Lexapro/
[7] LinkedIn: http://www.LinkedIn.com
[8] CarePages: http://www.Carepages.com
[9] CaringBridge : http://www.caringbridge.org
[10] OrganizedWisdom: http://www.organizedwisdom.com
[11] MDJunction: http://www.mdjunction.com
[12] Breatcancer.org: http://www.breastcancer.org
[13] Revolution Health: http://www.revolutionhealth.com
[14] Noah: http://www.okdork.com

From:VentureBeat

Monday, February 26, 2007

Microsoft to buy health Web search company

REDMOND, Wash., Feb. 26 (UPI) -- U.S. information-technology giant Microsoft has taken another step to bolster its new healthcare division, the company said Monday.

It has agreed to acquire Medstory, a small California-based company that develops Web search technology for health information. The financial details of the agreement were not disclosed.

Microsoft interest was piqued by Medstory's search technology, which pre-screens health Web search results to help consumers and healthcare providers more quickly find relevant health information, said Peter Neupert, head of Microsoft's Health Solutions Group.

The acquisition, which will be formally announced by Microsoft Chief Executive Officer Steve Ballmer at a New Orleans health systems conference, is the latest of several health-related purchases for the company.

Medstory CEO Alain Rappaport will head the medical search division at Microsoft.


Source: UPI
http://www.upi.com/HealthBusiness/view.php?StoryID=20070226-122815-5897r

see also:
Microsoft to acquire search start-up Medstory
from ZDNet
Microsoft Demonstrates Further Commitment to Healthcare Market With Planned Acquisition of Web Search Company at MicroSoft

Sunday, January 14, 2007

System to spot at-risk patients

Sunday, 14 January 2007, 00:06 GMT

Woman with asthma
Patients with conditions such as asthma could benefit
Computer technology is helping doctors identify patients with long-term conditions at risk of deterioration, before they need hospital care.

Using patient information from a range of sources, a new programme predicts when people with conditions such as asthma will take a turn for the worse.

The aim is to cut emergency admissions by allowing health workers to intervene before the situation becomes critical.

The Department of Health says this will mean patients get better care.

This new model will arm healthcare professionals with the information they need to target patients
Niall Dickson
King's Fund

With the right intervention, ministers argue, the deterioration of a patient's condition could be prevented or slowed down.

Health Minister Rosie Winterton said: "Our population is getting older and more of us are living with an illness or condition which means huge increases in demand on health and social care services."

Tests

The Combined Predictive Model has been developed by the King's Fund, Health Dialog and New York University.

The system uses patient information from accident and emergency, inpatient, outpatient and GP sources.

Part of the system has already been tested in several primary care trusts, and the fully fledged version has been trialled in Croydon, south London.

Niall Dickson, chief executive of the King's Fund, said: "This new model will arm healthcare professionals with the information they need to target patients who face a much greater risk of ending up in hospital if their conditions are not managed effectively in the community.

"Previous techniques only allowed us to identify patients who had already been admitted to hospital on at least one occasion.

"However, this model allows us to go beyond this group to identify and provide better care for the vast numbers of people whose conditions are not yet at this critical stage.

"Helping these patients with good disease management programmes, or supporting them to self-manage, should have a great impact on their daily lives and prevent unnecessary hospital admissions."

Geraint Lewis, specialist registrar at Croydon PCT, said the new model had transformed the way people with complex medical and social needs are looked after in Croydon.

He said: "By allowing us to identify individuals before they become acutely unwell, our clinicians can offer proactive - rather than reactive - care."


Source: BBC
http://news.bbc.co.uk/1/hi/health/6240551.stm

Thursday, December 28, 2006

"Cybermedicine?"

Gunther Eysenbach, M.D., Head of the Unit for Cybermedicine, Institute for Clinical Social Medicine and Public Health, University of Heidelberg, Germany

compass-shot.jpg (5249 Byte)

uk.gif (216 Byte) Summary of:
Eysenbach G, Sa ER, Diepgen TL. Shopping the Internet today and tomorrow - Towards the Millennium of Cybermedicine. BMJ 1999;319:1294 [full] (13 November)

See also:
Eysenbach G. Introduction: Towards the Millennium of Cybermedicine. In: Arvanitis T, Eysenbach G, Woodall J (eds.).Towards the Millennium of Cybermedicine. Educational Technology Research Papers of the University of Birmingham, No. 10. Birmingham/Heidelberg, 1999, p.2-3 (also published in linkout.gif (901 Byte)J Med Internet Res 1999;1(suppl 1):e2)

d-flag.gif (98 Byte) For Germans: A FAQ Cybermedizin in German is available here (Fragen und Antworten zu Medizin im Internet finden sich hier).

Introduction - Medicine and the Internet

The evolution of the "information age" in medicine is mirrored in the exponential growth of medical webpages, increasing numbers of online accessible databases, and expanding services and publications available on the Internet. The handful of computers linked by the predecessor of the Internet in 1969 has grown to more than 5 million websites today. In spring 1998, the World-Wide-Web had at least 320 million web pages of general content. In addition, there are countless conversational areas on the Internet, like chat rooms and newsgroups, where people exchange messages on tens of thousands of subjects. Somewhere more than 150 million people currently communicate over the Internet.

Medical information is often said to be one of the most retrieved information on the web. In fact, according to a survey of October 1998, 27% of female and 15% of male Internet users say that they access medical information weekly or daily. An interesting observation from this and other surveys is that health and medical content appears to be one of only a few online content categories that women are more likely to use than men.

No-one knows the exact number of medical (including health and "wellness") websites, but the frequently cited figure of 15,000 health sites is probably an underestimation, given that Yahoo USA alone lists more than 19,000 websites under the topic "health", and other international Yahoo catalogs together add roughly another 15,000 sites. Assuming conservatively that a maximum of 30% of all sites are registered in Yahoo, we can estimate that there are a minimum of 100,000 health-related websites available. Health information providers on the web include mostly private companies offering medical products or medical information (news services, electronic journals, databases), individual patients and health professionals, patient self support groups and professional associations, non-governmental organisations, universities, research institutes and governmental agencies.

Cybermedicine - a definition

The developments outlined above likely have a significant impact on efficiency and quality of future health care, consumer empowerment, public health, medical education and a number of other areas.

At the crossroads of medical informatics and public health a new academic field of "cybermedicine" is emerging (fig. 1).

An arbitrary definition of the discipline "cybermedicine" could be

"the science of applying Internet and global networking technologies to the area of medicine and public health, of studying the impact and implications of the Internet and of evaluating opportunities and the challenges for health care"

[Source: Gunther Eysenbach, in:
Eysenbach G, Sa ER, Diepgen TL. Shopping the Internet today and tomorrow - Towards the Millennium of Cybermedicine. BMJ 1999;319:1294 [full] (13 November)]

Of particular interest in our "Unit for Cybermedicine" at the Department of Clinical Social Medicine in the University of Heidelberg is

  • the exploration and exploitation of the Internet for
    • consumer health education,
    • patient self-support,
    • professional medical education
    • and research,
  • the evaluation of
    • the quality of medical information on the Internet,
    • the impact of the Internet on the patient-physician relationship and quality of health care
  • and the use of global networking for evidence-based medicine.

Fig. 1

fig-cybermed-corr.jpg (76057 Byte)

Cybermedicine is distinctive from telemedicine (although there are overlapping areas, especially as the Internet can also be used as a medium for telemedical applications): While telemedicine focuses primarily on a restricted exchange of clinical, confidential data, with a limited number of participants, for the most part from patient-to-physician and from physician-to-physician, in "cybermedicine" there is an global exchange of open, non-clinical information, mostly between patient-to-patient, sometimes between patient-to-physician and from physician-to-physician. Telemedicine for the most part is applied to diagnostic and curative medicine, while cybermedicine is applied to preventive medicine and public health.


Telemedicine Cybermedicine
Geographic coverage Local or regional Global
Application area Primarily curative medicine Primarily preventive medicine
Security High security possible Security limited
Data exchanged Clinical data Information for patient education and self-support, anonymised clinical data for medical education, anonymised epidemiological and public health data
Exchange between Patient-to-physician, physician-to-physician Patient-to-patient,
Patient-to-physician,
physician-to-physician
Aims monitor individual patients, diagnose and treat Prevention, monitor populations, gather epidemiological and other data from patients, use patient feedback and consumer involvement for evidence based medicine
Driven by Sometimes technological push Mostly consumer pull
Setting Controlled setting, limited number of well-defined users Uncontrolled conditions
Evaluation Possible Impact on population very difficult to measure
Reach Reaching tens or hundreds Reaching millions

Source: http://yi.com/home/EysenbachGunther/cybermedicine.htm

E-Health and E-Patients

by John M. Grohol, Psy.D.
November 9, 2006

You’re going to hear a lot more about these two things in 2007, as companies, doctors and organizations look to help better equip people to have a two-way conversation with their health or mental health professional that treats each person as a relative equal in the relationship.

We’ve all seen the power and reach of Wikipedia, and its success in showing that providing a platform to allow the world to collaborate can be a healthy, positive thing. And while it has had its bumps in its development, they shouldn’t detract people from understanding that the underlying message — empowering people to create and share — is very attractive and viral. Wikipedia has become, for instance, the first place many college students go to start research on a topic.

But along with e-health and giving people more information about their health and health care, there has to be some back and forth with professionals. After spending the past few days with a group of thought leaders in this area, I’d have to say that more and more professionals and doctors are willing to open their minds to a different way of interacting with their patients. And more and more patients are demanding such openness from their doctors.

The doctor-patient relationship is moving from doctor-as-expert to doctor-as-helpful-guide for those who would rather that kind of relationship. Not everyone will. But for those willing to take on a more active role in their health and healthcare, there is a growing rank of doctors willing to change their role. Willing to listen. Willing to help inform and guide where needed, but allowing the patient to really remain in control of their own future and health.

In the next few months, you’re going to see some amazing things online to help people take better control of their health, and to start to engage with their doctors in this new way. To open up the dialogue, and move the conversation from 20th Century medicine into 21st Century medicine. I’ll be writing more about this in the weeks and months to come, but I just wanted to give you a heads-up to be prepared. Because healthcare as you know it is going to change, and it’s going to start now.

Source: Psych Central
http://psychcentral.com/blog/archives/2006/11/09/e-health-and-e-patients/

U.K.: Sharing e-health info requires patient consent

BY Bob Brewin
Published on Dec. 20, 2006

Sharing medical information in electronic health records in England will require explicit patient consent, the United Kingdom Department of Health (DOH) said earlier this week.

The decision followed the release of a task force report on the National Health Service Summary Care Record. The record includes individual patient EHRs that sit at the core of a 10-year, $10 billion NHS project to serve 50 million patients in Britain with a system that connects 30,000 health care professionals.

The DOH said it plans to have general practitioners upload patient information contained in the Summary Care Record to the NHS HealthSpace portal. Patients will then be able to correct or amend their records and offer explicit consent for their records to be shared or opt out of sharing.

“After a realistic period, it would be assumed that those patients who have chosen not to view their summary care record are giving implied consent for it to be shared in appropriate settings,” according to DOH.

The Guardian reported that Lord Warner, the U.K.’s health minister, provided an ironclad guarantee at a press briefing this Monday that patient information would not be uploaded or shared without specific consent. If patients “don’t want their information uploaded, they can stop it before it is uploaded,” he said.

The Summary Care Record Task Force, which included representatives from DOH, the British Medical Association (BMA), emergency medical services, and hospitals and universities, said it considered patient consent on the use of electronic records the key issue of its work.

Dossia, the electronic health record project launched early this month by major American employers Applied Materials, BP America Intel Corporation, Pitney Bowes and Wal-Mart, will allow patients to opt in to the system and then decide what information to share and with whom.

James Johnson, chairman of the BMA, said the task force’s report was the first of its kind to look at the ethical and practical implications of sharing electronic summary care records and should help address patients’ anxieties about the use of their records.

While patients can bar sharing of their medical information, Sigurd Reinton, chairman of the London Ambulance Service NHS Trust, urged them to consider the consequences of their actions.

“In thinking about their options, I hope people, especially the elderly and vulnerable, will bear in mind that if we have your information, then paramedics, for example, will be able to offer the best possible treatment,” Reinton said. “It is the elderly and the vulnerable who may miss out if they have to formally opt in.”

Members of the Summary Care Record Task Force consulted with officials of the Veterans Health Administration in the U.S. to learn how the agency handles patient consent in its Veterans Health Information Systems and Technology Architecture (VistA) system. The task force said it decided not even to consider the compulsory model of VistA electronic records in the U.K.

DOH said with its acceptance of the recommendations of task force, it now plans to move forward with the rollout of Summary Care Records next February to early-adopter general practitioners.

Source: GovHealthIT
http://www.govhealthit.com/article97170-12-20-06-Web